Recruiting people who have had a psychosis
The main difficulty is finding people to take part. Some people are really interested in this type of research but others are unsure what it all involves. I work around hospitals in Manchester meeting patients who are currently on the wards or in rehab - because I run different types of assessments with them for other research projects. I have also met some people who attend the depot and clozapine clinics. They agree to take part and then I think once they have gone home to think about it they get a bit nervous about the whole thing. What is the best way for me to approach this? I am keen to get feedback....
Posted by Angela Rylands at June 6, 2006 10:38 AM
I am a mother of a 25 year old son diagnosed with schizo affective disorder. He was diagnosed 2 years ago, dropped out of college and loves with me. He no longer socializes and sometimes he vomits when he is forced to. This would happen if I had family to our house. I believe that he would find being a part of your research highly anxiety producing. Do you offer incentives to people to participate such as cigarettes,etc?
Posted by: Liz at June 8, 2006 03:34 PM
Angela - Just wanted to thank you for your work and interest in this area. My daughter would probably participate in a study like this if it was close to our home or over the internet. We live in the states.
Good luck to you and thank you again. This is such a critical issue for so many with sz or sza.
Posted by: Carol at June 8, 2006 06:46 PM
My daughter is exceptional, for a person who developed schizophrenia at the age of 21, in that she has managed to get two university degrees - a BSc(Hons) in organic chemistry and a BA in psychology. At present, I am trying to persuade her to make a greater contribution to my website at nzsf.com (which is still far from finished). She may be able to help you at some time in the future. I know that she is keen to correspond by email with someone who is working in the field of psychology/psychiatry. If you would like to have her email address, please drop me a line at firstname.lastname@example.org
Posted by: Alan Ireland at June 9, 2006 03:17 AM
My son is 24 and is diagnosed with schizophrenia which seem to have developed through stress/cannibis use. My experience has tought me that mental health services are made up of many silos standing along side one another without the basic linkages.
Because this illness may be a life companion for some, it is of outmost importance that services learn to communicate with each other.
A "Centre for Mental Health Excellence", in a learning organisation environment, with a lead researcher and consumer and professional researcher assistants with focused, centred and driven services, in a seamless system, to attain one's own best individual quality of life would be ideal. The evidence-based knowledge would be daily documented. Your area of research is one of the key missing linkages. My advice is- try and make yourself approachable.
I wish you all the best in your endevours. Best regards.
Posted by: Frank Filardo at June 10, 2006 01:11 PM
I just want to thank all those of you who posted comments. It sounds like the area is of great interest to you all. Liz suggested that the study seems to be highly anxiety producing. That is correct and there is an incentive of £50 to take part, transport and meals provided. I know this cannot necessarily account for the stress the procedure may cause, but in the full debrief, following the study procedure, participants have so far mentioned some therapeutic aspects of the taking part. Such as talking to someone else about stresses and experiences, and also the exposure to home truths can be used as an opportunity to discuss issues that have not yet been resolved. It seems that most of the participants already have strong relationships with relatives who have taken part (I am not sure if either party would have agreed to do it otherwise) but at the same time they have some niggling issues that may be recurring issues for both parties involved. I hope that information helps.
Posted by: Angela Rylands at June 23, 2006 03:21 PM
I think that doing it by email might be the way to go as it is less intrusive.
Posted by: Jan at July 6, 2006 09:36 AM
I was diagnosed with sz about 11 yrs ago. I have a college degree and am highly articulate with an excellent vocabulary. But sz has drastically altered my life. I can no longer go to school or work and am barely managing to make ends meet on SSDI and a work pension. I would be honored to take part in your study, but I live in the States. If you could do it via email...?
Posted by: Carolyn at July 6, 2006 05:00 PM
I have schizoaffective disorder, bipolar type; trauma; and bulemia nervosa w/purge. I hear voices and nonverbals nearly 24/7.
If this can be done by e-mail, I would participate in this research study.
I am living the savage atrocities of not having any privacy. There is nothing in this world but the grotesquely abusive, degrading, horrific humiliations of not having any privacy, the bad theys' artificially produced audio-filth, and THE SILENCE OF THOSE WHO KNEW AND KNOW AND DO HAVE POWER AND INFLUENCE and have done NOTHING not only to stop the onslaught of audio-filth but know the laws/torts. They will be held accountable for the (1) intentional infliction of excruciating emotional = physical distress; (2) the flagrantly improper, excessive, and unfair use of technology, including but not limited to the production of audio-filth; (3) the right to be secure in one's own person; (4) radiation from the aforementioned; and, (5) WHAT I CANNOT SEE DOES NOT GO AWAY.
How could I walk, talk, breathe, blink, move my head, sit, stand, cry, think, etc. The only lasting memory I have in this world is the brutally obscene degradation of my SELF as a direct result of not having any privacy and the abysmal absence of a plaintiff's privacy right's attorney.
This may not be the right website for this, but this is what I am living.
If you still want me to participate in this research study, I would be willing to do so. I hear voices and nonverbals nearly 24/7. I live in Cartersville, GA, USA; am staying at my sister's house in Winston, GA. Is there any compensation/remuneration for answering the questions?
Posted by: Laurie at January 30, 2007 01:45 AM
i was diagnosed 2 years ago.i am currently taking my medication which is helping alot.i go to phrenz group where i meet with other people with similar problems.we meditate and discusss how we are coping.i also see a councillor which helps me cope with my fears.things are improving since i was first diagnosed with schz. but i hope i can go back to colllege at nite and do a degree if i am well enough.ed.
Posted by: ed at April 14, 2007 07:48 PM
its 4:54 am i have been up since 2:00am. I have had several mris of my brain they have white matter on them. rad. suggest ms but ytd no dignosis. I got my first one in 2001 with my first panic attack. i hear voices, i see things that are not there, I also am ver parnoid i feel like someone is coming to get me all the time. although i tell myself it is not real my mind which is my enemy it does not work i am interested in what you have out there. currently I have benn dignosied with bipolar.
Posted by: wendy wilson at May 4, 2007 09:56 AM
What if Bleuler was absolutely correct-Schizophrenia is nothing more than a Split-Mind and the only satisfaction one might eventually gain would be the re-unification of the two warring factions..the spiritual versus the material.. Frank
Posted by: frank at June 3, 2007 02:15 AM