July 06, 2007

Another update

Joe had a bad night last night and was unable to breathe well enough to get enough oxygen so they had to intubate him and place him on a ventilator. This most likely means he will be on it now permanently. Though they will try to wean him off it once he is better (if he gets better), chances are slim that he will be able to breathe on his own without it, now that his body has gotten used to using it. That's just how it is with ALS.

Right now, this very minute, he has a high temperature and the left lobe of his lung is whited out by pneumonia, though his pulse has been lowered from the 130s to around 100 his BP (blood pressure) is low and is artificially supported for the time being. And I am sitting at home, hoping and waiting and not wanting to go to bed, though I must (this according to Dr O) lest someone from the hospital call to tell Karen or me he has taken a turn for the worse. How much worse can it get before it is critically life-threatening? When do we go in and just wait? I hope it never comes to that but so far I have not seen any good sign, no sign that he has turned some corner and is definitely going to recover. When his fever breaks, that will be one way of knowing...Right now it seems like he is going from one bad thing to something worse, though Karen keeps telling me things are looking up. They are? How? But I am furious with Karen right now and don't want to talk about her. Better that I cram my anger and stay civil right now, as Joe needs us in agreement, not at odds with one another. All that I will say is that she is a pathological or simply baldfaced liar.

Enough for now. I will keep you posted, if I can.

Posted by pamwagg at July 6, 2007 10:29 PM | TrackBack


Dear Paula,

Consider the line, "He will die, just as you want him to..."! I was half joking -- just commenting on the funny way your lovely compliment came out. Thanks dear heart, truly.


Posted by: Pam W at July 18, 2007 12:31 AM

I truly don't understand your comment to me. To what or whom does the "abject terror" refer? Is something wrong? Please advise.
Love,Puzzled Perkless

Posted by: Paula Kirkpatrick at July 15, 2007 07:37 AM

Paula, I assume you mean, "without abject terror"? :)


Posted by: Pam W at July 13, 2007 08:25 PM

Pammy love,
I've been at our cottage in northern Michigan for over a week. It took me a while to recover from the physical and emotional battering which I knew would happen, but I'm never prepared for the hurt that inevitably comes. My pain is nothing compared to that of your ever intrepid Joe's. I'm ashamed to even mention it, but I felt it contributed to the explanation of the length of my absence. You, and you alone, know my philosophy of life. I am happy that you disagree with me. Without your ever hopeful and always loving and giving, giving, giving, Joe would have fared poorly indeed without you by his side. Please don't let your feelings about Karen interfere in any way with your unique and uplifting relationship with Joe. Put her in the wings of the stage of life and continue to love as only you can. How I miss and love having you constantly in my life, although I am responsible for our temporary separation. If Joe receives the gentle and extrordinary impact that you have had on my life, when the time is right, he will die just as you want him to.
You light up every life you touch, T3

Posted by: Paula Kirkpatrick at July 10, 2007 03:15 PM

Hi Pam,

Just thought i'd drop you a note to let you know that I'm thinking about you and Joe and hoping that he is going to get better. Try to take care of yourself and get some sleep. Love, Sue M.

Posted by: sue marasciulo at July 8, 2007 07:47 PM

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