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Schizophrenia.com Site Activities: Prevention Update, and NIMH Talk

March 04, 2004

Prevention Update, and NIMH Talk

This week we're working on making higher priority information more available on the home page - so we've updated the home page to highlight the "Prevent Schizoprenia" information. Our goal with this information is to help all the families that have already suffered with at least one person who has schizophrenia - to not have to suffer with this disease in future generations.

Had a conversation with some researchers at the National Institute of Mental Health this morning. While they do great things - I get unbelievably frustrated at how slow they move. The sense of urgency is near Zero it seems with many of the NIMH folks (Not all I'm sure).

People are suffering from schizophrenia all around us, being jailed constantly - and they seem like there is no urgency at all. I've almost always worked in companies where there is intense enthusiasm for the company's goals and objectives (usually smaller companies) - and people work hard to move things forward very quickly. Whenever I interact with government agencies I always feel like I've suddenly been put into slow motion. Its extremely sad in the case of schizophrenia - because this is such an important area (the research, and the delivery of services) and the people that end up paying (literally and figuratively) are the people who have the disease, and their families.

I love what the NIMH does and stands for - but I wish they'd stop acting like my Grandmother, and get off their butts and treat schizophrenia like the urgent, deadly, devastating disease that it is.

Posted by szadmin at March 4, 2004 06:10 PM

Comments

Maybe we can do something. If an agency has noone to be accountable to then they behave in the described manner. It would be nice to have every friend and family member who has a complaint aagainst one of us instead take up the cause and get after the public servants!!

Posted by: marionw at March 24, 2004 01:28 PM
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