July 26, 2004

Day care.

The day care centre was closed for two weeks during which it was opened on a few occasions by the special request of parents and I volunteered to help on these days,the experience was very useful.
It clearly showed how important routine and structure and precision in instruction is in recovery.These have helped my son enormously,the speed with which he has recoverd his abilities would not have been possible without their inputs.Each client also has a personal counsellor available on a daily basis to deal with the many cognitive distortions that accompany most clients who are finally stablising and responding to medicines.
The maximum time given to clients is two years,I do not know what happens afterwards, do they slide back,do they continue to improve, apparently a close check is maintained on progress in each case and the parents/caregivers are advised as and when the centre feels that maximum benefit has been obtained by the client and no more improvement is expected by a continued stay.
Today the centre opens once again and I certainly am joyful for life has been kind of chaotic without it.

Posted by Monica at 04:54 AM | Comments (7) | TrackBack

July 21, 2004

July 2004

Time has aquired strange properties.It has in real time been only two weeks but it seems like months.Occasionally I wonder if me too is experiencing the surreality that my son experiences. In a sense it is like being truely alive so intense is each moment.
Two days ago my son slipped on the soccer field trying his best to run as fast as he used to before. He is advised now to rest his foot for at least two weeks.Panic set in when he had high fever the next night. Panic for he is on clozapine and it remained unclear if the fever was due to a drop in blood count or resultant of the injury,as it turned out,it was because of inflammation.
The morning was full with calling up doctors, checking on the antibiotics,arranging for a blood test and hoping and praying that the fever was not due to sudden TLC changes.
The positives of this medicine are many if one bear the tension, each week, of the blood report.I was hoping that at the end of four months there would be respite however I hear that the drop can happen any time and a once a month check is sacrosanct.

Posted by Monica at 04:34 AM | Comments (3) | TrackBack